Hospital sleep-deprivation has finally caught up with Keith. He had a bad bloody nose that persisted through the night. The drainage combined with chemo caused some horrendous vomiting this morning. It was black. That's all I'm going to say.
At 11, Keith had his audiogram to check how the chemo is affecting his hearing. He doesn't like doing those, for whatever reason, and it got ugly real fast. He's never been a tantrum-thrower but he threw one in the booth today. We finally called it quits after 40 minutes and the audiologist decided we better go the sedated route again in a few weeks. We had about 15 minutes between the audiogram and his leg castings which was plenty of time for him to fall into a deep sleep by the time the Physical Therapist came to get us. Clearly, he would have rather slept than have been pinned to the chair while his lower extremities were fitted for straight jackets. More tantrums ensued as he begged for a bed and for the lights to turn off. I don't blame him one bit. I didn't apologize for his behavior, either. He has suffered and continues to suffer and every time he tries to get some sleep around here, he's interrupted. It's not anyone's fault, it's just the way it is. I thanked the providers for their patience but I never once apologized for his behavior. I think he's entitled to a little rage now and then, especially because he never shows that, unless he's a walking zombie, as evidenced today.
Keith's finally sleeping right now while he receives an IV antibiotic. Hopefully we'll get his discharge orders soon so we can go. I already have the car packed and ready to roll. I hope when he wakes up, his feelings towards his "purple boots" have warmed up. Aunt Chels and I are working on stickers and special markers so we can help decorate them. Hopefully, he can find some fun in decorating a new set of casts each week. And I really hope that next week, they have more colors to choose from besides pink or purple.



5 comments:
Just let Keith know that ALL the superheroes wear boots. Batman, Spiderman, Ironman, etc. Now Keith the Mighty wears them too!
Love the updates--hope you won the BINGO. And I hope you get to throw a few tantrums too without apology--you deserve it!
Hang in there girl... You have every single mom behind you giving you hugs, support, and prayers... wish I could do more.
Bummer day for both of you! Way to stand up for your little guy. BTW, I really like the purple; but I'm a girl so what do I know!
Keith the Mighty is my hero for sure--purple boots and all!
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